4 January 2008

I've been in hospital for almost a week now and nothing has really changed, other then me feeling more productive chest wise. Last night I coughed up blood which wasn't very pleasant but is common in CF as it is a sign of infection - so today my lungs feel sore as though they have been hit a number of times, little things have become too much for me today - I walked to the bathroom and got severely out of breath so I asked the nurse to help me with somethings today such as a hair wash but she said the ward was very busy with the marsden patients being here she couldn't promise anything. So knowing I was in for a long wait I called up my mum and asked her to come and help me do somethings which she did. My mum is my life saver, she does a hell of alot for me and I know she does it because she wants to make things easier for me and she loves me but it must be such hard work for her having to care for me now and run a family home. We don't live close to the hospital either so it's not as if she could be here in 15 minutes its more of a 1 hr 2 hr job but she came and she got the basin from the nurse and set it up (felt like I was in her own salon) and she washed my hair, dried it and straightened it for me, she also filled up a bowl of warm water and soap so i could have a nice wash and feel nice and fresh. I am a very independent person and I find it really hard to ask people for help as I will always try but today I just couldn't seem to find the strength to do things.

I met with the transplant consultant today and we had a nice chat about things and I asked questions and he answered, he said he had looked at all of my results and he didn't see any reason why I could not be offered a place on the active transplant list and he needs to take all of my information off to harefield's meeting which will take place on Thursday and then I should expect a phone call telling me that I have a place then I need to decide if I want it or not. Obviously I do want the transplant if it should come up but there is more to it then getting a transplant, I think I will take about a week to reflect on things and just get a clear head rather then saying yes then jump every time my phone rings.

1 comment:

Alice Vogt said...

I also hated not being able to wash my hair, or having to ask help from everyone! It just sucks. My boyfriend at the time,(he left me when I really needed him, idiot, had to carry me up the stairs to my room a few times..