29 January 2008

In September I did an interview for cosmopolitan magazine about growing up and getting on with day to day life with my illness, I'd been in contact with the journalist on and off for a few months but had no date of when the article would be published and finally I got an email yesterday from cosmopolitan asking when I'd be free for a photo shoot and that they want to use my story in the May issue - am very excited about this, so I contacted the journalist and she is going to call me in a day or two to have a read through of the article and check that I am satisfied with the finished product then it is all systems go.

Today I was reading a post on the CF adults forum about an event called LIV being held by Thierry Henry at the Dorchester, London and it is set up to raise money to help find a cure for CF, Elton John, Matt Lucas and Jimmy Carr will be performing and due to Thierry's football he can not host the event so David Beckham is standing in for him, it is sponsored by emirates and nokia and is aiming to raise 1 million pound plus! this will be amazing if they could. I was approached my my CF nurse last September about doing a short film about my CF as they wanted someone with oxygen on but at that time I had just been put on oxygen 24 hours a day and was still getting use to the idea of needing it so I declined, but thinking about it now if I was approached tomorrow I think I'd say yes as I am a lot more confident with my oxygen now then I was back then and I think I have adjusted to it pretty well, that's not to say I don't throw a wobbly now and again because I do, I had one on Sunday when my parents took me out for a coffee but hey you can't be confident all the time can you?
click here for more information on this event - http://www.give2liv.com/

My Wonderful friend Sammy-Jo came to visit me today with her fiance Lyndon, It's always nice to see people and have a good chat about whats been happening outside in the real world, she came and wheeled me to the bathroom so I could have a lovely hot bath and we chatted whilst I was bathing, she's so sweet she washed the bath before we ran the water (as it's a communal bath) and she washed it afterwards for me, sometimes I feel so useless just sitting and watching people do things for me but I simply don't have the energy to do these tasks anymore. When we got back from the bathroom I connected my oxygen to the green lead which i thought was my oxygen (I have lots of green wires around my room you see, attached to various things such as the BREAS , oxygen, nebuliser, and one which I found out this evening is not actually attached to anything! half an hour later I was feeling rather peculiar my heart started to feel racy and i felt shaky, so I did my sugar levels - fine, then I checked my oxygen saturation's and to my shock they were 61% so I took my oxygen leads out from my nose and popped it in my mouth and nothing was coming out, so I went into panic mode, shouting 'No oxygen is coming out, connect me, connect me, I'm going to pass out' Sammy-Jo was panicking too as was Lyndon and we connected.. phew! saturation's then came up to 93% so I asked Sammy-Jo if I went blue and she said she thought I had, so.. I had actually connected myself to the nebuliser.. silly me.. It was rather scary.

It is Sammy-Jo's 21st birthday party on Saturday so am hoping to make it home in time, but I am not going to build my hopes up just yet though as this was the plan last week wasn't it?


4 comments:

Anonymous said...

thats the wrong website gorgeous, its http://www.give2liv.com/ xxx

Tinypoppet said...

I know it must have been scary at the time but LOL at you connecting yourself to the nebuliser :P

It's almost as daft as when I rolled my wheely table onto my chest drain tube....

*doh*

Yay for fab friends - they always make life that bit better don't they :)
xxx

Anonymous said...

LOL connecting yourself to the nebuliser, 2 oxygen taps just aren't enough :-P

Alice Vogt said...

Haha, I also used to put the nasal canula in my mouth to see if the O2 is coming out and how strong it is!!!