On Friday I got allowed to go home but the doctors said they were going to hold onto my bed until Monday just as a back up. So my mum came to pick me up Friday afternoon and off we went on our journey home, we decided that as a treat we'd stop off at our local Harvester restaurant for some dinner as we had a full oxygen tank and I was feeling pretty well. My mum dropped me off by the entrance and went to park the car, I managed to walk up the 4 stairs and into the restaurant without getting overly out of breath and we sat down and had a really nice meal together, then went home and i got settled into my room and snuggled into my lovely soft bed which i had missed very much.
On Saturday I had a rather eventful day - In the morning I wasn't feeling too well so when my mum did my physio my oxygen saturation's decided to drop to low 60's which was very bad and I turn't blue, which was rather worrying and through out the day they never really went any higher then 85% I spoke to the doctor's through-out the day and they asked whether I felt like my saturation's were that low and I said no as I didn't feel anymore out of breath then normal.. I was so wrong, It was also my best friend Sammy-Jo's 21st birthday that night and I was determined to go as all my friends would be there and she is a special friend to me so I wanted to be there for her. I had a bath and that seemed to be more of a struggle then imagined, when it came to getting dressed I couldn't do it as my chest just felt really tight, as if it had just closed in on me not allowing any air to pass in or out it was very scary, my mum helped me get dressed, pulling up my tights, helping me in my top, skirt etc whilst i used the BREAS most of the time as this was the only thing that was keeping my saturation's above 90% and opening my airways. when we arrived at the party J carried me to the door and I attempted to walk in, it was such a struggle and it took up a lot of energy and i felt awful. The party was good and the birthday girl looked gorgeous but i would have enjoyed it more if i could breathe, i felt really bad on the people who were engaging in conversation with me as I couldn't concentrate on anything they were saying as all i was thinking about was every breathe i took and how much I could not breathe. I then said to my mum i can't stay anymore i need to go to hospital and off we went, James carried me to the car and i still couldn't breathe - even with oxygen whacked up to 4 litres. We arrived at the hospital at 10.30 - the Dr saw us straight away, i had a Ventolin nebuliser to open my airways, put back on the BREAS, chest x-ray, blood gases and blood tests - the doctor said I had another infection as my infection markers where higher then when I left and that it was a good decision to come straight back. My saturation's still haven't really picked up and this is causing the doctors concern but I have faith in my CF team and I'm sure they will get me sorted and on the mend soon.
On Saturday I had a rather eventful day - In the morning I wasn't feeling too well so when my mum did my physio my oxygen saturation's decided to drop to low 60's which was very bad and I turn't blue, which was rather worrying and through out the day they never really went any higher then 85% I spoke to the doctor's through-out the day and they asked whether I felt like my saturation's were that low and I said no as I didn't feel anymore out of breath then normal.. I was so wrong, It was also my best friend Sammy-Jo's 21st birthday that night and I was determined to go as all my friends would be there and she is a special friend to me so I wanted to be there for her. I had a bath and that seemed to be more of a struggle then imagined, when it came to getting dressed I couldn't do it as my chest just felt really tight, as if it had just closed in on me not allowing any air to pass in or out it was very scary, my mum helped me get dressed, pulling up my tights, helping me in my top, skirt etc whilst i used the BREAS most of the time as this was the only thing that was keeping my saturation's above 90% and opening my airways. when we arrived at the party J carried me to the door and I attempted to walk in, it was such a struggle and it took up a lot of energy and i felt awful. The party was good and the birthday girl looked gorgeous but i would have enjoyed it more if i could breathe, i felt really bad on the people who were engaging in conversation with me as I couldn't concentrate on anything they were saying as all i was thinking about was every breathe i took and how much I could not breathe. I then said to my mum i can't stay anymore i need to go to hospital and off we went, James carried me to the car and i still couldn't breathe - even with oxygen whacked up to 4 litres. We arrived at the hospital at 10.30 - the Dr saw us straight away, i had a Ventolin nebuliser to open my airways, put back on the BREAS, chest x-ray, blood gases and blood tests - the doctor said I had another infection as my infection markers where higher then when I left and that it was a good decision to come straight back. My saturation's still haven't really picked up and this is causing the doctors concern but I have faith in my CF team and I'm sure they will get me sorted and on the mend soon.
4 comments:
I'm so sorry you're back in so soon sweetie but really glad you got to go to the party even if not for long! Keep your chin up! x x x x
So sorry to hear what a tough time you are having Sam, and especially that your homecoming didn't work out. Thinking of you lots and hoping you will be feeling better soon xxxxx
Your poor thing... Sorry to hear you couldnt enjoy the party as you wre having trouble breathing.. Big hugs x x
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